Jaclyn, Founder of The Lost Labia Chronicles

Jaclyn is incredibly well informed about this condition, has great communication skills and is very emphatic. I have found the one-to-one sessions extremely helpful as I have gained more knowledge regarding the management of the condition and also got guidance regarding the questions I need to ask my care providers regarding my current prognosis, diagnostic tests to rule out any secondary or alternative conditions and available treatment options. What I appreciate about Jacyln's knowledge sharing is that she is very precise and factual, and will even distinguish between care instructions which have been researched and recommendations issued by specialists (which though based on empirical evidence within their practice have not gone through the process of peer-reviewed research). She has helped me recognize my options for accessing better treatment going forward. I find talking to her therapeutic as she acknowledges and does not dismiss the fear, anxiety, anger and sadness that come with the diagnosis. At the same time, she gives one hope that the condition can be well managed and that this condition does not have to dominate one's life and happiness, despite remaining realistic about the possibility of flare-ups. She is doing the LS community a great service through her support work and knowledge sharing. 

I was diagnosed with LS in July 2022. I had never heard of the disease and was flailing around in the dark. I couldn’t get a gynecology or dermatology appointment and had no clue how to treat the LS or make myself more comfortable.

Thank goodness I found Jaclyn‘s website and was able to do several one-on-one calls with her. Jaclyn literally saved my life and helped keep my mental state afloat. 

She shared her expertise and vast knowledge generously and was thoughtful, kind, and compassionate all the time. 

Jaclyn is absolutely superb at what she does and was literally the best support I found.

It was a fantastic experience and a privilege to meet her.

Jaclyn is the person I needed. I quickly trusted her and felt safe. It took a very long time to get connected to a doctor that was really knowledgeable about LS. But even then I didn’t feel I was getting all the care I needed. There are a lot of mixed messages out there and it is hard to see straight especially when you feel hopeless and anxious.

For all the ladies not knowing what exactly their bodies are doing or what to expect, I hope you dont mind a little advice from one LS warrior friend. I had a pretty rough time this last month especially. The borax soaks haven't been helping me and with LS being my 4th autoimmune disorder the exhaustion and stress was almost more than i could bear.

When i looked in the mirror last week and basically almost all of my female architecture was gone..my panic attack was so bad i literally thought i was dying this time. The next day I remembered Jaclyn from The Lost Labia Chronicles had started coaching sessions several weeks before and I didn't hesitate. I sent her a quick message and asked her if she had an opening. I didn't even go on her site to find a time or anything I just literally sent her an SOS! 

She actually got right back with me and even though it was last minute she opened up a time to talk with me and I am so glad that I reached out to her. She is a wealth of knowledge and so kind and so thoughtful and just has the sweetest spirit and she put me at ease right away. And she's already been through this. It's been 4 years for her and so I didn't tell her anything that she didn't know and she thought of so many things that I didn't think about She gave me recommendations and things to think about. She gave me resources to look up.I mean she is so amazing I just couldn't thank her enough.. so if any of you are struggling right now with anything having to do with your LS set up a support call with her.

"I highly recommend a 1:1 chat with Jaclyn. There is nothing quite like the power of a person to person conversation to dismantle the fear that doom scrolling online by yourself can create. A new diagnosis is scary, especially when it's something like Lichen Sclerosis, where most of haven't even heard if it before diagnosis. Then comes the internet searching we all do which is only going to generate more fear. Chatting with Jaclyn lightens the load, disengages the panic button, and was exactly what I needed to reclaim a sense of normalcy in my life. A feeling of "I can do this" instead of "my life is over".

Jaclyn was absolutely fantastic as a supportive listener who provided a safe, comfortable, respectful place to talk about this traumatic diagnosis and symptoms. She was informed, helpful, kind and so very warm and validating. She clearly understands the difficulties that are experienced with this condition and I found myself remembering more information about my journey. Overall this opportunity to connect one on one was helpful beyond my wildest imagination.

So lovely to chat with Jaclyn, learn from her lived experience of LS and share thoughts and feelings. So easy to chat with Jaclyn she really listened and empathized with my recent diagnosis. Gave great advice and insight into how to manage symptoms. Thank you Jaclyn for the chat and for the great information you share to help everyone on their LS journey.

 found Jaclyn on Instagram once I started my deep dive into learning about LS. While I considered myself to be educated on vulvar anatomy and the basics of the disease itself, I wasn’t prepared for the isolation and confusion that comes along with this auto immune issue. On a whim, I decided to book a call with Jaclyn. She was amazing! This woman is no joke, she is smart, compassionate, informative and unbelievably supportive and passionate about helping women thrive despite having this diagnosis. She has provided counsel, validation and a roadmap on how to manage LS.

I’ve had two calls with her already, and wouldn’t hesitate to book with her again. If you are struggling or simply need tactical information, Jaclyn is THE one to call. I’m so grateful to and for her!