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TLLC Blog Posts

TLLC's blog is moving!

In January, 2023, TLLC partnered with Lichen Sclerosus Support Network (LSSN). This means my new 2023 blog posts will be published on LSSN’s page. For full details on what the partnership entails, watch this video.

Image of a sunset and a long road stretching in the horizon. The background is pale blue and the title text reads, "My Dilator Journey Part 2" in black font at the bottom.

My Dilator Journey Part 2

Today, I will continue my journey into weeks three and four. I also document how this journey impacted my mental health. Specifically, I highlight mental struggles and some wins throughout the two weeks. It is important to me to be transparent and open about my journey with you.

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Image of hands holding a bunch of mulitcolored lights against a purple background.

Working with Dilators: Why I Started Again

This post will be part of a four-part series on my journey with dilators. I will detail my experience each week, in a quasi-journal entry format. I am sharing my journey in the hopes that it will help you in your journey. This series will be a vulnerable and honest journaling of what I did and how I felt mentally on my dilator journey.

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Image of a bunch of pink and purple watercolor painting flowers taking up the middle and lower right edges. In the middle, in black cursive font reads" The Grief Project: Poems by an anonymous LS warrior" in the middle of the image. The background is a calming cream color.

The Grief Project: Poems by an Anonymous LS Warrior

Without further ado, let me introduce you to our latest warrior. Anonymous is a beautiful and generous soul living in the UK. I first met her in the lichen sclerosus virtual support meetups. She was also so wise, compassionate, and full of empathy for others in the group.

One day, I received an email from anonymous. I opened up two beautiful poems on her experience with grief for The Grief Project. When I read her poetry, I cried. I was completely moved and taken aback, by her talent to convey such a challenging and complex experience as the grief that accompanies lichen sclerosus.

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Image of a person standing on a sunny, shallow area of an ocean holding a bunch of red balloons over their head.

How Dilators Can Help Your Lichen Sclerosus

yours, there are many other reasons you may want to work with them that do not involve penetrative sex. In this post, you will learn all of the various ways dilators can be helpful to your lichen sclerosus journey in addition to helping with painful sex.

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Image of a person writing on a whiteboard with the words, 'now ,'tomorrow' and 'next. The person has the now box checked off. The background is a pale blue, and the title test reads "What You Need To Know About Timelines and Lichen Sclerosus" in black font at the bottom.

What You Need to Know About Timelines and Lichen Sclerosus

Since you were diagnosed with Lichen Sclerosus, have you ever given yourself a timeline to get better? Perhaps you gave yourself timelines concerning seeing relief from your medication, getting out of a flare, to getting into remission? Have you given yourself timelines and expectations for when you will be able to have sex again? Have these timelines caused you mental distress? Did you feel even more depressed and discouraged than you were when you initially set the timeline? If so, this post is for you!

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Image of a person in bed relaxing. The background is a pale blue, and the title test reads "Stress Reduction: The Secret You Need To Know" is in black font at the bottom.

Stress Reduction: The Secret You Need to Know

Are you worried about the effects of stress on your body and your Lichen Sclerosus? Do you feel caught in a vicious circle of knowing stress can flare your symptoms, flaring, stressing about the flare, etc.? If yes, you are not alone. Keep on reading for the secret of stress reduction and lichen sclerosus.

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Cream background with a wreath of yellow and pink flowers on the bottom of the image. In the center, the title text reads "The Grief Project: Megan's Story" in black cursive.

The Grief Project: Megan’s Story

A few weeks ago I had the pleasure of (virtually) sitting down with a friend and fellow LS warrior, Megan to discuss her journey with Lichen Sclerosus and grief. We had this conversation interview style, and what follows is a transcription of our talk. Megan is an incredibly brave, intelligent, and strong LS warrior whom I have had the pleasure of getting to know over the last year. She’s come a long way on her difficult LS journey, and I’m so proud of her.

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I am often surprised that she captures what has been on my mind.”

Jaclyn manages to put into words many of the thoughts, feelings, fears (oh, so many fears), and questions, that come with a diagnosis of LS. She captures both the physical and often more importantly the mental health aspects of learning to live with LS. Her generosity in sharing her personal journey and speaking truthfully about LS provides much needed hope and perspective
Joanne

Reading her blogs has helped me deal with LS in every way – physically, emotionally, and mentally. -Maria

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