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LS Resources

Education & support resources to help you on your LS journey.

Lichen Sclerosus Resources for your LS Journey

The following resources will help answer questions about lichen sclerosus, treatment, mental health, physical health, lichen sclerosus support, and so much more!

Image of a person working and learning at their computer. This image represents the various education resources that exist for Lichen Sclerosus.

Education

Keep scrolling for a list of education resources. These include medical organizations, as well as non-profit education organizations.

Lichen Sclerosus information & Education Resources can be fundamental for your LS journey.

  • List of educations pages.
  • Podcasts.
  • List of educators to follow.
  • eBook
Image of the cover page for Jaclyn's eBook. There is an image of a person's silhouette from the back as they look on into a beautiful sunrise. The title text reads: "Three Key Things you Need in Place with Vulvar Lichen Sclerosus'.

Free LS eBook

Another great resource for education is my eBook. I have a full chapter on education that can really help you if you are looking to learn more about the disease, treatment options, etc.

  • Evidence-based information.
  • Treatment options.
  • Information on vulvar cancer.
  • How to choose a treatment plan.
  • So much more.
Image of three people looking intimate and vulnerable hugging each other in support.

Lichen Sclerosus Support

Support is such a key part of healing and acceptance with Lichen Sclerosus. Below I list people to follow as well as support groups that exist. These are great resources to bookmark.

Keep scrolling for Lichen Sclerosus support options for your LS journey.

  • Support groups.
  • LS virtual support meetups.
  • Support forums.

Resources for Education

Podcast

Lichen Sclerosus Podcast. One of the single most pivotal podcasts out there dedicated to LS. The podcast is the epitome of education, with the host, Kathy, bringing on some of the world's leading Lichen Sclerosus specialists and medical providers for interviews.

The Vulva Diaries Podcast. Hosted by Dr. Amanda Selk, one of the leading LS and vulvovaginal specialists practicing out of Toronto, Canada, Dr. Selk interviews vulvovaginal specialists, including Dr. Gayle Fischer about Lichen Sclerosus, Lichen Planus, and a number of other vulvovaginal conditions.

Websites and Organizations

Lichen Sclerosus Support Network. A not-for-profit organization whose mission is to provide education to patients and providers to get diagnosed earlier. They have education on anatomy, vulva checks, steroid use, etc. All of my blogs and videos for 2023 will be featured on their website. All the fundamentals are there. Click here to visit.


The Center for Vulvovaginal Disorders. An excellent medical resource for research and publications on Lichen Sclerosus and other vulvovaginal conditions. Click here to visit.


Lichen Sclerosus and Vulval Cancer Awareness. They have tons of images, documents, and resources on Lichen Sclerosus and Vulvar Cancer. Click here to visit.

Looking for More Education?

Click below to get my FREE eBook on the three things you need if you have Lichen Sclerosus

Three Key Things To Have In Place When You Have Vulvar Lichen Sclerosus

Are you looking for a resource to help provide more stability and guidance on your Lichen Sclerosus journey? If so, you definitely want to check out my new eBook, “Three Key Things To Have In Place When You Have Vulvar Lichen Sclerosus”. I'm offering it free of charge.

Here are three things you'll learn from the eBook

Information about Lichen Sclerosus

You will gain a strong understanding of Lichen Sclerosus knowledge. You will have an overview of the various treatment options available such as steroids, laser, PRP, phototherapy, etc., as well as what you need to know about vulvar cancer.

How To Choose A Proper Treatment Plan

You will feel empowered by the information you learn in the first chapter to choose a treatment plan that you feel comfortable with.

Lichen Sclerosus Support

Finally, you will learn how to put together a diverse support system to help you through your LS journey.

Image of a person from behind, with their harm raised and hand on their forehead looking out at a sunset on a beautiful lake.

Click the button below to learn more and get your copy now!

People to Follow

  • jillkrapfmd on Instagram
  • dr.coreybabb on Instagram
  • hello.vulva on Instagram
  • lichensclerosuspodcast on Instagram
  • lichensclerosussupportnetwork on Instagram
  • dr_sandyflann on Instagram
  • vulvarcancerawareness on Instagram
  • vulvalcancerukawareness on Instagram
  • insicknessandinwellness on Instagram
  • drachelrubin on Instagram & Twitter
  • the.cvvd on Instagram
  • kellycaspersonmd on Instagram
  • lichensclerosusuk on Instagram
  • wellbeing.by.penny
  • vulva_researcher on Instagram

Resources for Individualized Support

I get it. Support groups aren't for everyone. You aren't always in a headspace where you are able to listen to other people's experiences with LS. And sometimes, like me, you are super introverted, shy, and have a difficult time sharing and asking questions in a group setting.

I offer 1:1 lichen sclerosus peer support calls for folks who are looking for more individualized support based on their specific needs.

For more details watch the video below or check out my booking page by clicking here.

Resources for Lichen Sclerosus Support Groups

*Please note, with support group options, I cannot vouch for them all. I am simply listing what is available so that you know your options and can choose what is best for you. I never want you to feel like you have to work with me or join LSSN's bi-weekly support virtual meetups. Do your own research and go for what is most supportive for you in your journey.

Support Groups

Lichen Sclerosus Support Network membership: 35$ USD a month. Launching in September 2022 – get on the waitlist and learn more about the benefits of the membership here.

Lichen Sclerosus Support Virtual Meetups: Bi-weekly meetups via Google Meet every other Saturday from 2-4 pm and 7-9 pm facilitated by Kathy of Lichen Sclerosus Podcast and myself. These events are completely FREE to attend. Come and share your diagnosis story, where you are at, and get advice and connect with other LS warriors. Click to join here.

Image of three people outside holding each other as they want down the road, respresenting the importance of support groups with Lichen Sclerosus. Lichen sclerosus resources.

Facebook Lichen Sclerosus Groups

*Please note, with support group options, I cannot vouch for Facebook Support Groups or online forums. I am simply listing what is available so that you know your options and can choose what is best for you. I always encourage you to do your own research and go for what is most supportive for you in your journey.

  • Lichen Sclerosus Canada.
  • Lichen Sclerosus – sclerosis – UK Support Group for Women
  • Lichen Sclerosis/Lichen Sclerosus – A Five Star Support Group.
  • Sharing is Caring About Lichen Sclerosus.
  • For Loved Ones: A Group Of Sharing About A Loved One With Lichen Sclerosus.
  • Lichen Sclerosis Support Group.
  • For Parents and Children with LS: A Group of Sharing About Children With Lichen Sclerosus.
  • Lichen Sclerosis Support Group
  • Lichen Sclerosus in children
  • Lichen Sclerosis & Lichen Planus Support Group Australia
  • Lichen Sclerosus/Lichen Planus in Children UK support group for parents

Lichen Sclerosus Forums

  • Reddit r/lichensclerosus.

Lifestyle Resources

Pelvic Health Yoga Membership by Penny

Many of us with Lichen Sclerosus live with pelvic pain, tight pelvic floor muscles, etc. Thus, in addition to Lichen Sclerosus treatments, a great complementary piece to your main treatment is pelvic floor physical therapy and/or pelvic floor yoga.

Penny, a fellow lichen sclerosus warrior, pelvic pain sufferer, and yoga teacher put together a pelvic health yoga membership to address pelvic pain and reduce stress. The Pelvic Health Yoga membership comes with both live and on-demand yoga classes, which makes it accessible for you to do your own practice at any time to make your body & mind (and more importantly your pelvis) happy!

The yoga classes are Hatha-inspired to help calm the nervous system. This is important because stress greatly affects lichen sclerosus. Thus, it is important as fellow lichen sclerosus warriors that we practice stress-reduction techniques such as these. Additionally, the program teaches and encourages pelvic floor relaxation, which is beneficial for pelvic pain. Regular practice of pelvic floor yoga can also help foster a greater connection between your mind-body, and, specifically your pelvic floor.

I have personally seen an incredible improvement in pelvic floor tension since joining the membership. Further, by being in the membership, I take steps to continuously work on my stress levels! Let me know if you join! I'd love to see your face in the weekly classes.

What You Get

Weekly live 45-minute Pelvic Health Yoga class
On-demand access to yoga in the form of:
45-minute Pelvic Health Yoga classes
Meditations
Breathwork
Pelvic Reset poses
Pelvic Flows

Facebook community for you to ask questions, get support, and vibe with Penny.

Oh, and if you aren't already, make sure to follow Penny on Instagram as she has some amazing pelvic floor and LS content.

Sign Up with my Discount Code – 30% off your First Month


Sign up here and don't forget to use my discount code (JACLYN) to get 30% off of your first month!

Feel free to email me at jaclyn@lostlabia.com if you want to chat more about my experience with pelvic floor yoga.

Lichen Sclerosus Resources for Sex and Intimacy

Sex Education and Intimacy Coach

Wondering what lichen sclerosus means for your sex life?

Have questions about libido, how to communicate with current/future partners, solo sex, etc?

Perhaps you want some guidance on what toys are good options for LS and what to look for?

If so, you definitely want to check out Celina, a sex educator, who is an incredibly wise and brilliant soul living with lichen sclerosus. You can work with her 1:1

Click here for links (and discount codes) for pleasure & wellness toys, salve, and lube as well as 1:1 coaching. And, I mean, who doesn't love a good discount code?

Image of Celina holding various intimacy toys. Celina is a great resource for sex and intimacy with lichen sclerosus.

Resources for Lichen Sclerosus, Sexual Intimacy & Trauma

Dr. Sanaz Yaghmai – Trauma-Informed Support: Coach & Consultant.

Dr. Yaghmai is a trauma-informed therapist and coach who specializes in trauma, sexual pain/vulvovaginal pain, and lichen sclerosus. She blends counseling with trauma-informed yoga to help folks with LS heal.

“Healing is an evolutionary process that continually reveals itself through subtle yet profound shifts in self-awareness and agency.”

Dr. Yaghmai
Image of Dr. Yaghmail wearing a black halter top with wavy brown hair to her collarbone. She is standing outdoors with trees in the background.

Work with Dr. Yaghmai by clicking this link.

Resources If You Are In Crisis

Lichen sclerosus is a heavy diagnosis. It can have a deep impact on our mental health.

If you are in crisis and/or suicidal, there is hope. There is help available to you 24/7. Please refer to some of the following crisis support lines and services by clicking on the button below.

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Contact Information

@thelostlabiachronicles

@thelostlabiachronicles

jaclyn@lostlabia.com